Dear Well Meaning People;
There have been more than one of you in my life lately. Let me explain a few things for you quickly.
CRPS is NOT arthritis. It is NOT a pulled muscle, pinched nerve, or a product of my imagination. Just because your friend's sister's cousin's aunt's husband's nephew's girlfriend had AMAZING results with ground up bat droppings made into a poultice and applied to their feet on the evening of the first full moon does NOT mean that a) it would work for ME and b) that I'm going to rush out and gather bat droppings. I am under the care of NO LESS than five freaking doctors at the moment. I'm willing to bet that if bat droppings had any medicinal affect, ONE of the 5 would have heard of it. So stop already.
DO NOT tell me how horrible my life is, and then ask breathlessly for details. My medical situation, history, and proposed treatment is simply none of your business. If it were, I would tell you. Heck, if I thought it would actually HELP me to talk to you, I would...but not when you're all eager and salivating for the latest news just so you have something to talk to your friends and family about.
And another thing. DO NOT tell me how there are children dying of cancer, managing disabilities, pain, etc and doing it far better than I am. This is MY personal struggle, MY battle, and I quite frankly don't give a fuzzy rat's behind how I rate in your personal view. Poor lil Jimmy is just a breathing head, drags himself across the ground with his front teeth, how dare I complain? Well, good for Jimmy. I don't care. I get to moan, whine, and gnash my teeth if I so desire, BECAUSE this is MY life. Attempting to guilt me, manipulate my emotions doesn't work. So just back the heck off.
I don't have booze or chocolate. Consider yourself WARNED.
And if you still have the need to tell me about some mythical treatment, or children who are having their limbs ripped off an inch at a time by maggots, I sincerely hope you get something large and unwieldy stuffed in a body oriface. Repeatedly.
And to those who will feel compelled to point out, "They were only trying to help!" Please, just don't. Help doesn't guilt. Help doesn't invalidate, manipulate, or leave you feeling like absolute crap BECAUSE you hurt.
Countdown to my 41st Birthday
6 months ago