Wednesday, July 23, 2008

Crying

Went and saw my GP again because I keep having really bad swelling in my hand, and it turns this delighful red/purple colour, and is icy cold. It was so bad last night that Wolf sat rubbing it, trying to get it warm, and I ended up wearing a mitten, trying to ease the cold. The pain is pretty intense when it does this...like having your hand in a snowbank, that achy/burning cold intensity.

Dr told me that its
Reflex Sympathetic Dystrophy, told me to look it up at home...and then told me he was really, really sorry. Yeah. Words you wanna hear, right? He told me that he wished it wasn't, and he hopes like hell he's wrong, and he's referring me to a pain specialist...but that he's seen other cases and certain its what's going on with me. He also told me that the specialist and WCB will likely ping pong me for 6 mths to a year saying it isn't before they cave and admit it is...and there's a 50% chance that it will improve...but it will never heal or go away completely.

Freaking wonderful.

1 comment:

Christine said...

It may never go away but it is possible to learn to live life with it. You will go through the normal stages of grief, the last one being acceptance. It can take a while to get there, but you can do it. I would suggest going to the RSDS.org and the RSDHope.org websites and printing all kinds of stuff to take to your future doctors. The last thing you want is a runaround.

I have had RSD/CRPS now since 12/2/2006. It took me some time to figure out me. Am I upset that I cannot do what I once did? Yes. Support from family and friends on this long journey will be the most beneficial for you, at least it was for me.

Hugs. The doctors wording should have been a little more upbeat and not so gloomy. This is a horrible condition, but with treatment, doctors, support, and family and friends, you really can learn to live with it.

I started a blog too, and a website if you'd like to check them out. If not, no worries, at least read through both the above sites. They are VERY informative.
http://AfflictedWithRSD.com
http://blog.christineleiendecker.com

Hugs,
Keep in touch,
Christine