Sunday, May 17, 2009

Anniversary On Wednesday

It seems surreal to me. Wednesday will be the anniversary of my injury. The day my life ended, my NORMAL life. When I was whole of body and spirit and mind. Before every day became a question not if I hurt, but rather to what degree. A year ago today I was planning my future, schooling and LPN graduation, buying our home on an acreage...it was so, so close. I could almost taste it. I had even begun studying for the anatomy and physiology prereqs that I would be enrolling in that summer. I had the very best of my two worlds. Home during the day, with my children, homeschooling Diva...then to work for 3 pm every afternoon. I loved my job, my career, and I was good at it. Very good at it.

Now...well...now. As I said, there's pain. Always. There's depression, a natural occurrence, I'm reassured by the professionals. Losing use of your dominant hand/arm and all that effects, plus pain, tends to produce that reaction. Nifty of them to validate me, isn't it? And there's stress, and anxiety. Being in public is avoided at all times if possible, since someone bumping into me causes hours of excruciating pain...so of course I'm extremely anxious to the point of vomiting if I'm forced to be in public. And just in case all of THAT wasn't fun enough, lets add in the toll something like this takes on your husband, marriage, and children. Oh, and as an EXTRA special bonus, we'll throw in having to battle WCB and one of the nastiest case managers known to man. That's not just my opinion of her, folks. My union rep shares it, and when she was quiet for a while, he actually thought we'd managed to get her fired, since he has six or seven other case files on his desk, all complaints, all with her as the case manager.

Figure this one out. The one pain treatment that's actually had any REAL effect for me is the lidocaine block. I can actually hug my children with BOTH arms. That is a huge thing. Unfortunately, the effects don't last long, 12-18 hrs or so, but I'll take what I can get. My pain Dr Rx'd it for me to have at home, via a home nursing service, an IV and pain pump. Its the same treatment I get at the hospital/pain clinic, only diff being the pain pump rather than normal IV and it runs for 12 hrs.

WCB DENIED THE TREATMENT. I kid you not. My case manager, without requesting any of the 20 or so pages of studies and literature that the pharmacy has about these blocks, went to the medical advisory team, who didn't know much about it...so it was labelled experimental. Cause THEY DON'T KNOW MUCH ABOUT IT. Meanwhile, they've been being billed for my treatments in the hospital and pain clinic, and my case manager (aka The Hag) tells me that I can still get the treatments there!!!

Here's the problem though: the pain clinic is short on space. Too many paitients, not enough time. So if I (or anyone else) can get their therapy in the community, then that's what the pain Dr wants to have happen. So I've been told I can have a few more treatments at the clinic, but that's it. To pay for this myself, looking at $200 a treatment...not to mention that if I DO pay for it, WCB could turn around and claim all my probs are from the 'experimental treatment' and cut me off.

So, I'm planning on getting completely wrecked drunk on Wed. I've gone from having plans for my family's future to this...not being able to even hug my children with both arms. Getting drunk won't solve anything...but nothing's going to solve RSD anyways. Not like getting drunk will make it worse. And no, I won't take my meds, so no worry about interactions. I'm a weak drunk anyways. Two or three drinks and I'm hooped.

3 comments:

Debbie said...

I am so very sorry you are going through this pain. And the frustration of not getting the treatment covered. Do you guess continuing to barrage them with the request might help?

smnthpt said...

Wow, a year already. Not exactly an anniversary to celebrate. I am sorry this has happened. I see RSD patients at work almost daily and the constant problems that come with trying to find care that actually works. WSIB is just as big a hastle here too. If it involves paying any money out they put you through the wringer. It's bad enough that you have chronic pain and have to deal with the effects of that but they don't have to make it that much harder. It just serves to ratchet the stress levels up sky high... not that they weren't already. Big hug. It's Thursday morning here... how was last night? Better yet, lol... how are you this morning?

thehorizontalyoyo said...

Are you having so many problems because you live in Canada? Is this your health care system? (I'm certainly not saying ours is superior. Ha! Not by a long shot. Seems like it's messed up where ever you are!)